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ENDOMETRIOSIS SHE TRUST (UK) MEMBERSHIP PAGES
Every day a young girl somewhere is off school because of pain due to undiagnosed endometriosis.
Somewhere a woman is in despair because she isn’t pregnant – yet again.
A mother is distraught after a hysterectomy, when she wanted another child.
A student is in shock after a laparoscopy to remove a cyst and her ovary was also removed.
WE NEED YOU TO HELP US
WE NEED TO EMPOWER WOMEN TO MAKE THE RIGHT INFORMED CHOICE BY GIVING THEM IMPARTIAL INFORMATION FROM EVIDENCE-BASED RESEARCH DATA.
PLEASE HELP US IN OUR TASK
When we help each other we are in a way helping ourselves too.
It emboldens us and makes us stronger and better able to weather the storm that endometriosis brings along with it’s diagnosis.
WHY SHOULD YOU BECOME A MEMBER?
- Quarterly Newsletter on-line
- 50 Fact Sheets to access
- NEW 16 page brochure – “Endometriosis: A Detailed Guide”
- CD Recipes – Endo Anti-inflammatory Diet Ideas (send an sae to the office)
- Endometriosis Articles
- Website Research Updates
- Buddies System
- Quarterly Lunch Meetings in London
- Webinars – Quarterly talks fee reduction
- “Victoria Booklet” for Teens – 10-13 years and 14-16 years
- “Why is My Mummy Ill?” Booklets for your children
ENDOMETRIOSIS SHE TRUST (UK) trying to help you:
- Ideas for treatment and care for the whole person, not just the ‘gynae’ bits
- endometriosis is a long-term debilitating disease
- there is no known cure because we do not know the true cause
- self-management of your own symptoms may help to reduce the pain levels and improve fertility choices
- an understanding of endometriosis facts helps you to live with this enigmatic disease
- our 50 leaflets help you to gain the factual information to help you explain to your family, partners, friends and health professionals why you feel so ill
- the Buddy system allows you to link up with 2-3 others in your area to help support one-another through the treatments
ENDOMETRIOSIS SHE TRUST (UK)
National Charity Reg. No. 1076843
A Board of Trustees governs us with many years working in the field of endometriosis. We have attended the World Endometriosis Congress in 1989, 1992, 1994, 1996, 1998, 2000, 2002, 2005, 2008, and 2011.
As a member of the American Society of Reproductive Medicine we have attended their Annual Meetings since 1997, and keep up to date with all the research on endometriosis and fertility.
We also attend meetings at the European Society for Reproductive Medicine and Embryology when appropriate.
We have a strong knowledge base and have the research at our fingertips..
Endometriosis SHE Trust (UK) offers impartial information on pharmaceutical drugs, surgical techniques, nutritional supplements and anti-inflammatory dietary programmes, herbal medicine, homeopathy, chiropractic and massage therapies that may help improve quality of life.
Although there is no known cure, we want to help you to understand this disease and to enable you to choose the combination of therapies that may help you to improve your quality of life and to make the right informed choice for your own individual treatment.
Endometriosis is complex disease that may become disabling, research shows that it is a genetic disease, which can be passed down the family line.
It affects over 2 Million women in the UK, 178 Million worldwide, regardless of race, class or age (from puberty to menopause).
It is the only chronic long-term disease affecting only females. (Rarely a man has been found to have endometriosis in a knee joint after taking GnRH analogues for bladder cancer).
Endometriosis can cause debilitating abdominal pains, it may result in cyst formation, scar tissue or adhesion build up, and the blood from the endometriosis implants is retained within the abdominal cavity. Normally this womb lining tissue just sheds blood via the cervix to the outside of the body. It is not meant to go the other way.
This womb-lining tissue, the endometrium, may seed itself deep into other organs and begins to grow. As it responds to the hormonal menstrual cycle it sheds blood directly into the abdominal cavity – where no blood should be. It has no-where to escape, so triggers an inflammatory immune response and as tissues engorge with blood, pain ensues and fertility may be harmed. Painkillers dull, but do not always stop the pain. The outside of the womb, ovaries, bowel, bladder, kidneys, adrenals and diaphragm may be affected. Occasionally, endometriosis tissue can be found in the lungs and women cough up blood at a period.
The consequences on quality of life can be horrific and life changing for some women with severe disease. At a personal level trying to work day-to-day, trying to maintain relationships and enjoy life to the full can be curtailed when intense debilitating pain strikes.
Some women have mild symptoms, but if it spreads then symptoms may worsen. It does not always worsen thankfully. There is mild disease, deep-infiltrating disease and possible ovarian cyst formation, (chocolate cysts or endometriomas, filled with stale blood). Sometimes the digestive tract becomes involved as endometriosis may grow on that tissue and irritable bowel symptoms ensue. Many women find themselves misdiagnosed with IBS or PID or PMS or cystitis, and may be given the wrong treatment.
All these women need our support to overcome the pain and infertility. If we do not help one another then who else will help us?
We need to create an ‘endometriosis family’ approach as we are all in this together. We all want to lead healthy fulfilling lives. One woman said, ‘just think what we could have been if we did not have endometriosis pulling us down’. Well, we need to fight this disease, together.
Be kind to yourself, rather than fighting against the pain and distress, give yourself permission to feel ill. Look upon yourself as a sick little child and try to hug yourself better, a kind and gentle approach to coax your exhausted body and soul to get well slowly but surely, seems better than the anger and frustration, which may make the pain more intense. It can be quite frightening to find that your body has gone out of control. In this day and age we all expect a ‘magic pill’, one that suddenly puts it all right. Endometriosis doesn’t always respond to treatment protocols as we want it to.
Somewhere a little girl at school is taken to sickbay, crumpled in a heap. We need to help her to find the right treatment to prevent the disease developing into a more severe form.