Our current Board of Trustees consists of a cross –section of individuals from various professional backgrounds, some of whom have experience of endometriosis themselves. All of us have an understanding of this often misunderstood and unrecognised disease.
|Patron :||Julia Bradbury|
|President:||Mr. Chris Mann||- Consultant Gynaecologist, Wolverhampton|
|Vice President:||Mr. Ashwini K Trehan||- Consultant Gynaecologist, Dewsbury, London|
|Chair :||Dian Shepperson Mills||- (Nutrition Lecturer/Researcher/Author)|
|Vice Chair :||Leyla Okhai||- (Senior Equality Advisor)|
|Health Professional Liaison Officer :||Jo Johnson||- (Oncology nurse)|
|Special Advisory Panel Chair :||Natasha Ray||- (GP)|
|Finance Officer :||Susan Wilson||- (Accountant)|
|Secretary for FaceBook and Twitter :||Danielle Bevan-Jones||- (Media/Journalism)|
Dian Shepperson Mills - Chairperson
Cert Ed. B.Sc. BA, Dip ION, MA.is a Complementary and Natural Healthcare Council Certified Practitioner – seeing clients on a one-to one basis for nutrition therapy counselling. She is a member of BANT (British Association of Applied Nutritional Therapy), and Chair of the Nutrition Special Interest Group for the American Society of Reproductive Medicine, and member of European Society for Reproduction and Embryology, Chair of Endometriosis SHE Trust UK, Fellow of the Institute for Optimum Nutrition, Fellow of the Royal Society of Medicine.
Dian’s nutrition research interests include women’s health issues, endometriosis, sub-fertility (in both male and female), endocrine disorders such as polycystic ovary syndrome, PMS and menopause. She has published several papers, abstracts, books and book chapters and has given lectures to scientific societies in Europe, the USA, Asia, Australia, New Zealand and South America. Dian works closely with doctors and consultants in the UK, USA and in the EU. Dian is an Advisor to the International Endometriosis Association head-quartered in America, Japan, Brazil, the Nordic countries and other European groups, as well as the independent groups in Australia, New Zealand and Ireland. Dian has worked with thousands of women suffering from woman’s health problems worldwide to advise about healthy eating of nutrient-rich foods to reduce inflammation. Dian has past experience of endometriosis.
Leyla Okhai - Vice-Chair
- is a Senior Equality Advisor, specialising in supporting disabled staff at Imperial College London. Leyla has develops project and policies to champion equality across the university. Prior to this Leyla worked at the University of Oxford developing and implementing innovative race equality initiaitves. Leyla has also volunteered in Spain at a socio-cultural centre running programmes to support new migrants. She is trained as a TEFL teacher and has extensive experience in student support gained from her time as an Executive Officer at Leeds University Students’ Union. Her interest in endometriosis comes from having close friends who are suffers and a passion for gender equality in healthcare.
Danielle Bevan-Jones – Secretary for FaceBook and Twitter
- is a presenter and actress, as well as a Documentary Film and Television graduate, radio host and mum. She is currently in the process of making her own independent documentary films about issues affecting women, and has a lot of experience in providing support to women in need. Danielle was diagnosed with Endometriosis when she was 21, fighting, like so many, for over 7 years for a diagnosis. She had seen several doctors, all of whom had suggested that her pain was “in her head” and upon diagnosis, she decided to research the condition. Appalled by the statistics she found, Danielle became determined to make a difference within the world of Endometriosis and focuses mainly on awareness and support. She aims to empower women through education and believes that raising awareness of Endometriosis is the route to a cure.
Jo Johnson – Health Professional Liaison Officer
- has been nursing for over 22 years and has spent much of her career working within the oncology setting. She is currently working in Neuro-oncology, as lead clinical nurse specialist, caring for patients with brain and spinal tumours and enjoys meeting the supportive care needs of this complex patient group. She undertook her BSc (hons) in Cancer Nursing at the Royal Marsden and her MSc in Advancing Nursing Practice at King’s College, London. As part of her MSc she became co-designer of an oral chemotherapy diary, which has won a number of prestigious awards and is now being used internationally to support patients undergoing oral chemotherapy as part of their cancer treatment. She is due to start her PHD next year. Jo was diagnosed with endometriosis at the age of 29, but believes she had the disease from the age of 14 and had to suffer for many years with pain and infertility before finally becoming pregnant (after 5 years of trying) and being diagnosed shortly after giving birth. She has had numerous operations including a hysterectomy and bilateral salpingo-oopherectomy, as well as a variety of medical treatments. She is passionate about the supportive care needs of women also effected by this disease and raising awareness, particularly in teenagers. In her spare time, she is a Girl Guide leader and is excited about working with the Endometrosis SHE Trust to identify future projects including possibly working with the Girl Guide Association.
Dr Natasha Ray – Special Advisory Panel Chair
- is a family GP who works part-time in a busy suburban practice. She has a specialist interest in women’s health and Paediatric medicine. Initially completing a degree in Genetics, she then trained as a Doctor at University College London, qualifying in 1998. She is a member of the Royal College of General practitioners and has a diploma from the Royal College of Obstetric and Gynaecology and Faculty of Family Planning. She has a keen interest in endometriosis with regards to increasing awareness of the condition in her patient population and with medical colleagues.In addition, to offer support and advise for treatment options both for medical and complementary therapies.
Dr Ray is married to a doctor and time away from work is spent looking after her young family.
If you are interested in becoming a Trustee please contact us on 07506056350